Rare Disease Day: Discover Rare Diseases from A to Z
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We shed light on rare diseases to accelerate diagnosis
Discover howOur mission
Fondation Ipsen, under the aegis of Fondation de France, support projects of general interest in science, education, disability and health, with a particular focus on the early detection and care of people living with rare diseases. Fondation Ipsen strives for a future where all rare disease patients receive timely diagnosis, respect, and support.
Our latest stories
Claude Revert: Still Standing
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Yamina’s Life shares patients’ voices at the Fondation Ipsen and Science webinar
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More than Rare: The Journey of George
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Rare Library: Rare Disease Awareness Around the World
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World Health Assembly: Amplifying the Voice of Rare Youth
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Our newest books
The Rare Disease Gazette #29
In this edition, Erika Berg, PhD, hosts a conversation about Building strength together: How rare disease caregivers form communities to support each other and their loved ones.
Little Issue #14
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Little Issue #13
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
The Rare Disease Gazette #27
In this edition, Erika Berg, PhD, hosts a conversation about Redefining Connection: How young people are shaping the future of the rare disease community through technology and innovation.
Noah, the Little Panda
Noah, the little panda, loves to paint the world around him. But a rare illness is gradually taking away his sight. How can he live and keep drawing in the dark?
Little Issue #12
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
Little Issue #11
Little issue is a free magazine for children living in underserved communities. It contains scientific and educative activities.
The Rare Disease Gazette #28
In this edition, Erika Berg, PhD, hosts a conversation about Bridging silos: How scientists studying rare disease are building cross-disease communities to advance research and innovation.
Discover our activities in 2025:
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